Jill Woodworth

TSC TALKS, Episode 20; "Strange Things", aka Infantile Spasms in TSC with Tarra Hassin. A Primer on Perseverance, Perception and Acceptance

Informações:

Sinopsis

Tarra Hassin gives us an inside look at her experience with her son Colin's TSC diagnosis at 10 weeks old with seizures and how she started to notice "strange things" happening. and that led to IS diagnosis and treatment. We also discuss TS Clinic in Denver, family impact, frustrations and challenges in the healthcare system, and education system. Her advocacy leading to legislation in NM to change the use of restraint in school settings as well as the need for more education and awareness of ABA therapy. Tarra shares her philosophy of acceptance and attitude while on this journey with TSC.