Diabetes Connections With Stacey Simms | Type 1 Diabetes |

  • Autor: Vários
  • Narrador: Vários
  • Editor: Podcast
  • Duración: 480:14:54
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Sinopsis

Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent diabetes advocates, authors and speakers. She also shares personal stories of connection from people with diabetes and their friends and family.

Episodios

  • Dexcom's CEO on G6 Launch & G7 Update / Changes at Beyond Type 1

    22/01/2019 Duración: 59min

    Dexcom CEO Kevin Sayer answers your questions and looks ahead. We talk about issues with the G6 sensors, Medicare, what happened to the Share servers New Year's Eve and he takes lots of questions from listeners. Plus, a look ahead to the smaller G7. That new version will have the transmitter and sensor in one piece. It's due out in late 2020.  In our Community Connection, catching up with Beyond Type 1. They've got a new CEO and a new push to help with type 2. Stacey talked to Thom Scher a few weeks back about what makes BT1 tick. Previous interview with Thom Scher And in our Tell Me Something Good segment, Stacey explains that Will’s Way – a small but mighty charity – is marking a big milestone. Previous interview with Will's Way Join the Diabetes Connections Facebook Group!  ----- 1:40 Stacey welcome - thanks JDRF Greater Western Carolinas for having us at the recent Type One Nation Summit. Benny was Rufus! Proud mom moment for Stacey.  6:00 Interview with Dexcom CEO Kevin Sayer 33:15 Stacey talks about Bey

  • A T1D Geek Squad? / Bigfoot's Lane Desborough

    15/01/2019 Duración: 58min

    Did you ever wish you had a Geek Squad on call for diabetes tech issues? Like one of the big box store helpers. David Panzirer with the Helmsley Trust wants to make it happen, starting with CGMs. David explains why he thinks this will work, who will pay for it, and shares his story; two of his three children live with type 1. Join the Diabetes Connections Facebook Group!  Plus.. catching up with Bigfoot Biomedical’s Lane Desborough about their subscription model. Stacey also has information about Bigfoot's new agreement with Lilly Diabetes.  And Tell Me Something Good! Going from DKA to IronMan in just one year?! You'll hear Lauren Dahlin's fantastic story ---- 1:30 Stacey welcome includes a bit about our trip to Israel (more here from Stacey's FB Live) 5:30 Interview with David Panzirer Take action - text the word “CGMChamps” to 555-888 or log on to www.cgmchampions.org 35:25 Stacey talks about Lilly & Bigfoot's new announcement 38:45 Interview with Lane Desborough 55:30 Tell Me Something Good all about

  • T1D Parenting Advice From Stacey & Moira McCarthy / Katie DiSimone on Tidepool-Loop

    08/01/2019 Duración: 58min

    Get diabetes parenting advice from two D-Moms you know and trust: Stacey & author/speaker Moira McCarthy.  In a brand new monthly segment, they answer your questions about kids and T1D. Moira is an award-winning travel writer, the author of many diabetes books and articles including “raising teens with diabetes,” and mom to Lauren, diagnosed 21 years ago at age 6.   Join the Diabetes Connections Facebook Group to ask us a question and enter to win Moira's book on teens and T1D. Previous interviews with Moira In our community connection, another diabetes mom talks about finding the DIY community and setting up Loop when her daughter was diagnosed in 2015. Now Katie DiSimone works for Tidepool on their Loop project. Plus.. more Tell Me Something Good – good news from our community.. straight from you!   ---- 1:50 Stacey Welcome: New Year's Resolutions Sign up for our newsletter here 4:20 Diabetes parenting advice with Stacey & Moira 41:00 Katie DiSimone talks about Loop 54:45 Tell me something good - a

  • NBC "The Titan Games" Contestant Chris Ruden Lives With #T1D

    01/01/2019 Duración: 54min

    The new Dwayne Johnson / NBC show the Titan Games premieres this week and body builder Chris Ruden – a previous guest who lives with type 1 – is one of the contestants. You may have seen him in the commercials, he wears a prosthetic arm. Chris talks about how the mental burden of T1D and the challenges of being born with a shorter left arm and only two fingers led him to the incredible path he’s on now.  He’s got advice for all of us. Listen our to 2017 interview with Chris here Since our interview, Chris traveled to Uganda to help children with type 1 diabetes there. Learn more here.  Plus.. what is the T1D Fund? Have you heard about this from JDRF? Stacey talks to Karen Jordan from the Bay Area, CA JDRF Chapter about this newer way of raising money for research. And something new this year: good news straight from you! Want to tell us something good? Email stacey@diabetes-connections.com and share your story. This podcast is not intended as medical advice. If you have those kinds of questions, please contac

  • T1D & The Great Christmas Light Fight / The Hangry Woman

    18/12/2018 Duración: 51min

    The Mure family won 50-thousand dollars in the Great Christmas Light Fight on ABC and gave it to JDRF. Stacey talks to Joe Mure who wasn’t sure he wanted to compete at all. He hung up twice on the producers! Joe’s son was diagnosed with type 1 at age 5 and we get the story behind the Little North Pole and the network competition.  If you'd like to donate to JDRF via The Little North Pole, click here Plus, who is the Hangry Woman? We talk to Mila Buckley about finding support for a younger person with type 2 diabetes. Also this week, Stacey reports that CW Star Austin Basis (Beauty and the Beast and more) has published his comic books, The Kinetix. We talked to him earlier this year when the stories about a superhero teem of kids with disabilities was launched on Kickstarter. Listen to that episode here.  And, with this last scheduled show of 2018, a look back at an amazing year.   Join the Diabetes Connections Facebook Group!  ----- Stacey Welcome: We talk about the Kinetix from Austin Basis Interview with Jo

  • T1D Advocate Quinn Nystrom / MySugr CEO Frank Westermann

    11/12/2018 Duración: 01h05s

    Advocate and author Quinn Nystrom was diagnosed with type 1 as a young teenager, just a few years after her little brother developed T1D. Her high school prom date inspired the title of her book, "If I Kiss You Will I Get Diabetes." Quinn shares her story, talks about running for office and tells us what's next.  Plus, MySugr CEO Frank Westermann on how his company tries to help make diabetes suck less (and we get Stacey's reaction to that motto). Want Stacey to speak at your event in 2019? Email stacey@diabetes-connnections.com or connect on any of our social channels. ----- 2:00 Stacey welcome 3:00 Stacey shares podcast reviews (one is a question about the Facebook group, link below) Join the Diabetes Connections Facebook Group!  5:00 Scott Johnson interviewed Stacey last week via FB live. You can watch that here or read the transcript! Stacey also shares the story of the first time she met Scott at the Friends for Life conference. 8:20 Interview with Quinn Nystrom 47:30 Interview with Frank Westermann 57:4

  • Our 12 Year Diaversary - Going Untethered & Other Changes

    04/12/2018 Duración: 48min

    It's Stacey's family's 12 year diaversary. Benny was diagnosed the first week of December in 2006 just before he turned two. This week, Stacey takes a look back and gives an update on how they're managing now. There are significant changes to share; Benny started an untethered routine about two months ago. Learn more about untethered here. Also known as POLI (Pumping On Long Acting Insulin) untethered means you take long acting insulin like Tresiba or Lantus once a day but also use the pump. Stacey explains more.  Also this week, one of the biggest changes in the past 12 years has been the rise of smart devices. Stacey talks about Klue, a new app that can sense when you’re eating and help you with boluses! Check it out and sign up to Beta here.  This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.    Join the Diabetes Connections Facebook Group!  ----- 1:30 Stacey welcome & reads reviews 6:40 Stacey reflects on life in 2006 when Be

  • Talking to Teens About T1D with Jill Weissberg-Benchell

    27/11/2018 Duración: 01h57s

    We've got a parent's survival guide when it comes to teenagers and type 1 diabetes this week. What to do when your child doesn’t want to hear about diabetes anymore and hears your helpful advice as just plain nagging. Jill Weissberg-Benchell has a PhD in psychology and is also a certified diabetes educator. We discuss talking to your teen, listening to your teen and strategies to get through this oh-so-interesting time in their lives. It’s not just about attitude. Their bodies are making it really difficult for diabetes. Plus, remember the glucose necklace? It looks sort of like a glow stick necklace but contains sugar for lows on the go? They’re going to be ready to go by the end of year and we have a way to get yours for free. Head over to Glucose Revival and sign up for their newsletter (Look for "Get Updates") to get on the list for 1000 free necklaces. Diabetes Connections is not affiliated with Glucose Revival - be aware that you are sharing your email information in exchange for this free offer.    Joi

  • DIY to FDA: Howard Look Explains Tidepool + Loop

    20/11/2018 Duración: 38min

    Loop - the DIY app that helps with automated insulin delivery - may become the first do it yourself diabetes solution to go to the FDA. But why did Tidepool decide to take on this challenge? Stacey talks to Tidepool CEO Howard Look about what this decision means, how it’s going to work and what it means for those interested in DIY but not willing to use out of warranty pumps or do a lot of programming ourselves. And of course we’ll explain what Loop actually is. Read the Medium article Howard mentions here A French company announces they’re a step closer to approval of their closed loop – we’ll talk about Diabeloop  And Pandora gets into the podcasting space. Diabetes Connections is one of the few shows selected for the first launch! Listen to past episodes where we talk to DIY, OpenAPS and We Are Not Waiting advocates and experts. Join the Diabetes Connections Facebook Group!  ----- 1:30 Stacey welcome & explains Loop 6:50 Interview with Howard Look 30:30 Diabeloop explained 35:00 Pandora and podcasts B

  • Novant Health CEO Carl Armato: Hope, Hospitals and 50+ Years with T1D

    13/11/2018 Duración: 01h03min

    Carl Armato was diagnosed with type 1 as an infant, he’s now the CEO of Novant Health, a large hospital system. But Carl didn’t share his diagnosis with many people – partly because of a reaction he got from a coach in middle school – who cut his playing time when he found out. Now very open about his T1D, Carl has written a book, A Future With Hope, that tells the story of his diagnosis, growing up in the days before home meters and how his family rallied around him.  Plus, this week marks World Diabetes Day! Ever wondered why the symbol is a blue circle? We’ll explain.  And Stacey gives a sneak peak of her new project: Club 1921!   Join the Diabetes Connections Facebook Group!  ----- 1:40 Stacey welcome, talks about recent Facebook issue with podcasts. If you listen via Facebook please consider switching over to a podcast app or the homepage  6:00 Interview with Novant CEO Carl Armato 57:33 The Blue Circle explained   ---- Use this link to get one free download and one free month of Audible, available to D

  • SU Football Player Andrew Armstrong / JDRF Youth Ambassadors

    05/11/2018 Duración: 56min

    Andrew Armstrong was diagnosed with type 1 diabetes in high school, when college scouts were already coming around. He had the unique experience of being recruited by someone who knew exactly what he was going through - one of the coaches he met had a daughter with T1D.  Andrew is now in his third year at SU and linebacker coach Brian Ward still supports him, as does Athletic Trainer Tim Pike who lives with type 1. Andrew shares his story plus tips and advice for student athletes. We taped this episode in front of JDRF families at Syracuse University. They asked Andrew questions and then Stacey put the kids in front of the microphone.  And, this diabetes awareness month, Stacey takes a moment to talk about Project Blue November, a clearinghouse for online diabetes news, events and inspiration.    Join the Facebook Group!  ----- 1:50 Stacey welcome 5:00 Interview with Andrew Armstrong Interview with JDRF CNY Ambassadors: 32:00 MP  34:30 Bella 37:30 Logan  Hockey Fights T1D 40:00 Amie  51:00 Project Blue Novemb

  • Jackson is A T1D Teen Running for More Than Diabetes

    01/11/2018 Duración: 37min

    This bonus episode is about running, community and finding a way to make a difference. It's a great way kick off Diabetes Awareness Month.  Stacey worked with Tammy Lowry in her previous job at a radio station. In 2015 Tammy's son Jackson was diagnosed with type 1, just a few weeks before they were both set to run a half marathon to benefit children's cancer research. Jackson's diagnosis took him out of that race, but it led to bigger goals. You can read about that first year here. Read about Tammy & Jackson now. Learn more about the Isabella Santos Foundation   Join the Facebook Group!  Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone      Click here for Android     

  • Jen Block: Behind the Scenes at Bigfoot

    30/10/2018 Duración: 59min

    Stacey talks to Jen Block from Bigfoot Biomedical with a look at why they plan to be more than a pump company, offering help navigating healthcare and a subscription service. Jen is the VP of Medical and Clinical Affairs. She was diagnosed with type 1 her sophomore year in college, during a cross country road trip. Now a Nurse Practitioner and Certified Diabetes Educator, she shares her story and details about Bigfoot. In our Know Better Segment, one of the very first studies about LADA – sometimes called type 1.5. We’ll tell you what researchers learned. And Stacey shares a story about a recent wedding where she made one T1D friend and embarrassed herself trying to track down another.   Join the Facebook Group!  ----- 1:40 Stacey Welcome 4:50 Interview with Bigfoot's Jen Block 49:30 LADA study 52:30 Stacey doesn't have diabetes radar but she is very embarrassing when she thinks she does..   ------ Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for

  • Renza Scibilia is Deliberately Non-Compliant / Type 1 Renegade Run

    23/10/2018 Duración: 56min

    Once called deliberately non-compliant, this week's guest is all about the importance of language when it comes to diabetes. Renza Scibilia has some strong opinions about why words really matter. We’ll talk more about her non compliance – it has to do with her Looping, using one of the do it yourself options - and about her diagnosis as a young adult. Plus, information from Diabetes Australia and The Grumpy Pumper In our Community Connections this week, the Type 1 Renegade Run is making noise in the Northeast. The event this past weekend marks the 7th year of this obstacle course and block party. And a closer look at keeping insulin at the right temperature from the pharmacy to your fridge. JDRF, ADA & Helmsley Trust are teaming up to study this issue.  Did you see Chris Ruden pop up in the NBC Titan Games promo?! Here's our interview with the T1D body builder from last year.   Join the Facebook Group!  ----- 1:30 Stacey Welcome - Syracuse and DC round ups, looking ahead to the DiabetesMine Summit 4:00 I

  • Eversense: The Implantable CGM

    16/10/2018 Duración: 54min

    Darrell Greene is one of the first people to try Eversense, the implantable long-term CGM from Senseonics. With Eversense, a doctor places the sensor in the upper arm where it stays for three months. More information here. Darrell explains what the experience is like, how the sensor feels under the skin and shares his story of living with T1D since his early 20s. Darrell is a local news anchor in Memphis, Tennessee and has some fun stories to share about working in the industry.  Watch the video of Darrell and his doctor explaining Eversense. Darrell even taped the procedure! Our Know Better segment this week features information about Lilly's faster acting insulin, moving along through the aptly named PRONTO studies. Join the Facebook Group!  ----- 1:30 Stacey welcome - information about the podcast on YouTube 5:15 Interview with Darrell Greene 49:00 Information on Lilly's faster insulin - Pronto Studies ------ Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go!

  • JDRF Research: Then & Now with Aaron Kowalski

    09/10/2018 Duración: 59min

    JDRF’s Chief Mission Officer Aaron Kowalski talks about what’s new and next in terms of research. He also gives us perspective on what’s come before including how JDRF helped fund the CGM and hybrid closed loop landscape that we’re all very familiar with now, but that almost didn’t happen. Aaron explains what else JDRF is looking at these days, including glucose responsive insulin. He shares his family's story as well - he and his brother both have type 1. Plus.. how do you get rid of needles and Sharps containers? The rules aren’t the same in every state or even every city. Put your Zipcode in at this website and find out what's recommended where you live.   Join the Diabetes Connections Facebook Group!  ----- 1:30 Stacey welcome 4:10 Interview with Aaron Kowalski 52:30 Information about Sharps Containers from SafeNeedleDisposal------ Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone      Click here for Android 

  • "The Resident" Tackles T1D on Prime Time TV

    30/09/2018 Duración: 47min

    The Fox TV show "The Resident" takes on type 1 diabetes and gets it right! This week's episode "The Prince and the Pauper" features two plot lines about diabetes. Stacey speaks with the co-executive producer Andrew Chapman on why this issue and why now. Chapman lives with LADA (Latent Autoimmune Diabetes in Adults) also known as type 1.5. He tells Stacey there are two other people with diabetes on the writing staff. Drew Chapman's author page See Chapman's play 99 Tropes in Seattle later this year! Learn more about LADA in previous episodes: The DIYPS (LADA featured in the Community Connections) Also features information about the start of OpenAPS Disney Channels' Jennifer Stone Shares Her Story Game show episode: Wait Wait Don't Poke Me! (From July) When TV & Movies get diabetes wrong (Beyond Type 1 article) Also this week, what researchers are learning about OpenAPS – the do it yourself closed loop – from Twitter conversations! Read the study write up here.  Join the Facebook Group!  ----- 1:25 Stacey

  • Alec Smith Died While Rationing Insulin (Bonus Episode)

    27/09/2018 Duración: 44min

    A difficult but important interview with Nicole Smith Holdt. Her son, Alec, died in 2017 just after he came off his parents' health insurance and realized he couldn't afford his supplies. He began rationing insulin and died less than a month later. Stacey talks to Nicole about how this could have happened and what her message is to the diabetes community and to lawmakers. Nicole will be at the #Insulin4All rally and protect Sept 30 at Eli Lilly headquarters. More information: Insulin4All Protest information NPR: High Price of Insulin Leads to Lethal Rationing Snopes: Did Alec Smith Die Because He Couldn't Afford Insulin Join the Diabetes Connections Facebook Group  Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone      Click here for Android 

  • Mike Lawson - Open Up Your Bag (Zip Zip Zip)!

    25/09/2018 Duración: 47min

    "Open Up Your Bag" is a new children’s picture book about diabetes. The story behind it takes us into a great conversation with the author Mike Lawson. Mike was diagnosed as a young adult (after initially being misdiagnosed as type 2) and he shares stories about finding the diabetes community, getting involved in organizations like TuDiabetes.Org and Diabetes Hands Foundation and what led him to write the book and start Diabetes Doodles Plus, a new resource for our community is now available in audio form. Listen to a bit of Bright Spots and Landmines, a diabetes guide by DiaTribe's Adam Brown Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! You can get Bright Spots and Landmines by using this link. Learn more about A Bad Case and listen to our previous interview with Erin Spineto  Join the Diabetes Connections Facebook Group!  ----- 2:00 Stacey Welcome - Hurricane Florence update and "A Bad Case" is being released 5:20 Interview with Mike Law

  • Libre USA Update: Longer Wear, Shorter Warm-Up

    18/09/2018 Duración: 47min

    Big news for Abbott, the makers of the FreeStyle Libre. This summer the FDA okayed a shorter warmup and a longer wear for the glucose monitor. Stacey talks to Tim Dunn, Abbott’s Director of Clinical research. They talk about the challenge of longer wear, the practical info you need to know if you use the Libre, and a look down the road as they partner with companies like Bigfoot. Plus, a protest planned at the end of the month – all about affordable insulin. We’ll explain how you can help even if you can’t be there in person. Information from T1International here. Join the Diabetes Connections Facebook Group!  ---- 1:30 Stacey Welcome 4:30 Interview with Tim Dunn 40:30 #Insulin4All Protest information  43:00 Stacey upcoming events & shares why in-person connection is important. She talks about the first time she and Benny met a little boy who wore an insulin pump and what a difference that made for them.  Use this link to get one free download and one free month of Audible, available to Diabetes Connecti

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